Columnist Connie Chandler offers a message of courage and hope for those spending this season in a hospital bed.

A new review of studies reveals that incorporating SMA into newborn screening programs yields clinical improvements and ...

Fatigue in the diaphragm may contribute to breathing issues in people with spinal muscular atrophy, a new study reports.

SMA gene therapy Zolgensma safely improved motor function in children with SMA who needed tracheostomy, a real-world study ...

Columnist Ari Anderson pays tribute to his mom, who excels at many roles, including advocate, manager, teacher, and caregiver ...

Disability life coaching is turning out to be just the balm columnist Brianna Albers needed to recall the importance of community in SMA.

Cherie Ehlert lives in Vancouver, British Columbia, Canada. She is a disability advocate and created “Charlie's Angels” to ...

Columnist Connie Chandler writes about her family's tradition of baking and decorating holiday cookies, a project that SMA ...

Sixteen years after her daughter's diagnosis of SMA type 1, guest columnist Cherie Ehlert is no longer counting the months, ...

Columnist Helen Baldwin finds the perfect gift for her granddaughter's birthday, one of the many unexpected blessings in her ...

FDA approved Itvisma, a one-time gene therapy for SMA patients ages 2 and older. Itvisma restores SMN protein, improving motor function and reducing treatment burden. A Novartis executive says the ...